Congenital abnormalities: experiences of parents atoshakati intermediate hospital, oshana region, Namibia

  • Authors

    • Marian Sankombo Ministry of Health, Namibia
    • Linda Lukolo University of Namibia
    • Charles Lukanga kanga Kimera University of Namibia
    2017-08-24
    https://doi.org/10.14419/ijm.v5i2.8106
  • Parents, Experiences, Children, Congenital Abnormalities.

  • Abstract

    Background: Congenital abnormality (CA) is one among eminent problems in the society that affects the livelihood of the individual, communities and the health sector. It creates uncertainty among family members as they strive to identify ways and means to assist one another in the upbringing of these children born with an anomaly. The ultimate purpose of this study was to describe and explore the experiences of parents of children with congenital abnormalities and to identify the source of support such as parents employs when dealing with the child born with congenital abnormalities. This study was conducted at Intermediate Hospital Oshakati (IHO) in Namibia‘s Oshana region.

    Methods: A qualitative, explorative and a contextual study design using a phenomenological approach was utilized throughout this study. In-depth interviews were conducted with twelve “purposefully†selected participants from the population of parents of children born with congenital abnormalities whose children were either admitted in hospital or brought for follow-up. Data analysis was done using a content analytical method.

    Results: Data were derived from 12 participants interviewed, comprised of parents of children with reversible and irreversible conditions, long hospitalization, more frequent follow ups and those waiting for surgery. The results were categorized in seven categories, including: 1) A child with congenital abnormalities: the impact of disability; 2) Family relationships; 3) Parenting expectations and practices; 4) Altering one’s family daily life- treading a new path; 5) Social support; 6) Formal services; 7) Societal and community acceptance.

    Conclusion: The expectations parents had for a normal child becomes a nightmare when the child they were expecting is born with the disability. Living with such a child can be stressful for parents and other family members. Therefore, exploring and describing the lived experiences of parents of children born with congenital abnormalities is an important in the process of finding ways to assist or support parents to provide proper care for their children.

  • References

    1. [1] Albrecht, D.G. (1995). Raising a child who has a physical disability. New York: John Wiley &Sons, Inc.

      [2] Barlow, J.H., Harrison, K. &Shaw, K. (2004). The experience of parents in Juvenile arthritis: Clinical child Psychology & Psychiatry Volume 3, Issue no. (3), pp 447.

      [3] Braeneuner, S. & Media, D. (2014).What Causes Increased Stress for Parents of Children With Special Needs: Nashville.

      [4] Brink, H., Van der Walt, C. & Van Rensburg, G. (2006).Fundamentals of Research Methodology for Health Professional. Cape Town: Juta.

      [5] Burton,L., Westen, D.,& Kowalski,R. (2009). Psychology 2nd Australian & New Zealand Edition.Australai: John Wiley & Sons.

      [6] Canam, C. (2011). Maintaining Family Life: Meeting the Challenge of Parenting Children withChronic Health ConditionsBC Council for Families.

      [7] Cousino, M.K. & Hazen, R.A. (2013). Parenting Stress among Caregivers of Children With Chronic Illness: A Systematic Review. Journal of Pediatric Volume 38 No. 8 Page 809.

      [8] Heiman, T. (2002). Parents of Children with Congenital Abnormalities: Resilience Coping and Future Expectations. Journal of Development and Physical Disabilities. Vol.14, Issue No. 2. https://doi.org/10.1023/A:1015219514621.

      [9] Kathy, C. & Mike, F. (2001).The Stigma of Social Exclusion in Health Care. London and New York: Routiledge.

      [10] Lavoie, R. (2014). Helping Children With Learning Disability Find Social Success.

      [11] Matthew, J., Modrcin,M.S.W. & Robison, J.M.A. (1991). Clinical Care Update: Children andFamilies.Parents of Children with Emotional Disorders: Issues for Consideration andPractice.Community Mental Health Journal, Vol. 27, No.4.

      [12] Reichman, N.E., Corman, H. and Noonan K. (2008). Impact of Child Disability on the Family: Maternal and Child Health Journal.Medscape Publishers' Circle. ISSN: 1092-7875,1573-6628)

      [13] Rozenweig, J.M. & Huffstutter, K. (2003).Integrating employment with parenting of children having mental challenges, a paper presented at annual meeting of the Western Psychology Association, Vancouver: Canada.

      [14] Sajjad, S. (2010).Stress Faced by Mothers of Children with Intellectual Disability and its Impact on their Family Life. University of Karachi: Pakistan.

      [15] Schardein, J. (2000) Chemically Induced Birth Defects, 3rd ed. New York, Marcel Dekker. https://doi.org/10.3109/9780203909904.

      [16] Scott, E. (2007). Mother Friends: How Mothers Can Use Friends To Relieve Stress. Retrieved from About.com Guide. Accessed on 23/03/ 2017.

      [17] Uchino,B.N., Cacioppo, J.T., &Kiecolt-Glaser, J.K. (1996).The Relationship between Social Support and Physiological Processes: A Review with Emphasis on Underlying Mechanisms and Implications for health: Psychological Bulletin, Volume 119 No.3. https://doi.org/10.1037/0033-2909.119.3.488.

      [18] UNICEFF. (2013). The State of the World’s Children 2013: Children with Disabilities. New York: Prographics, Inc.

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  • How to Cite

    Sankombo, M., Lukolo, L., & kanga Kimera, C. L. (2017). Congenital abnormalities: experiences of parents atoshakati intermediate hospital, oshana region, Namibia. International Journal of Medicine, 5(2), 228-233. https://doi.org/10.14419/ijm.v5i2.8106

    Received date: 2017-07-11

    Accepted date: 2017-08-07

    Published date: 2017-08-24